DE

And what do you wish for?

“Change is only brought about by taking action.”

Dalai Lama

Results

Circle chart of participant groups: “patient” as the largest circle, “family member” as a circle about one third that size, plus a small unlabeled circle for staff members
Who participated: 61 patients, 19 family members, 7 staff members.
Stacked bar chart of age groups, each bar showing male respondents in turquoise on top and female respondents in pink below: ages 12–18: 4 and 0, ages 19–29: 9 and 1, ages 30–39: 8 and 3, ages 40–49: 21 and 5, age 50 and older: 27 and 4
Age distribution of the 82 respondents who answered this question – the 69 male respondents in turquoise, the 13 female respondents in pink. Men aged 40 and older are the most strongly represented.

61 patients, 19 family members, and 7 staff members from various hemophilia treatment centers took part in the survey. Of these, 84% stated that they were male. The bar chart above shows clearly that male users aged 40 and older are the most strongly represented.

Pie chart for the question “Does the documentation in the app serve as a basis for discussion at the hemophilia treatment center?”: 65 percent yes, 35 percent no
For 65%, the documentation serves as a basis for discussion at the hemophilia treatment center.
Bar chart for the question “Do you use the app regularly to document your own therapy?”: 87 percent “yes, fairly regularly”, 13 percent “no, rather irregularly”
87% document regularly – their own therapy or that of a family member.
Pie chart for the question “Do you document immediately after factor administration?”: the larger half answers “yes, more or less immediately”, the smaller half “no, usually with a delay” – the chart does not give percentages
According to the survey, 57% document immediately after factor administration, the rest with a delay.

High adherence and motivation for one’s own therapy concept

57% of respondents stated that they usually complete the digital documentation in the app immediately after factor substitution. The likelihood of entering all data correctly is therefore higher in this patient group. Another fantastic result: a full 87% of our users regularly document their own therapy or the therapy of a family member with the app.

For 65% of respondents, the documentation in the app plays a central role in discussions with their treating hemostaseologist or during regular visits to the hemophilia treatment center. The physician can view anomalies, such as an increased number of bleeds, directly in the web portal and respond to them in a targeted way.

Bar chart for the question “Did any problems occur while using the app?”: 18 percent yes, 82 percent no
82% experienced no problems while using the app.
Pie chart for the question “Have you contacted support?”: slightly less than half yes, slightly more than half no – the chart does not give percentages
According to the survey, 46% have contacted support at some point.
Pie chart for the question “Did support help you?”: 97 percent yes
97% of those who contacted support could be helped.

Very good usability

smart medication eDiary is simple and intuitive to use: 82% of our users had no problems operating the application. 46% of respondents stated that they had contacted support in case of a problem with the application. 97% of respondents could be helped by support!

Bar chart for the question “Did you have problems with the installation?”: 16 percent yes, 84 percent no
84% completed the installation without problems.
Bar chart for the question “Was the user manual helpful?”: 92 percent yes, 8 percent no
92% of those who used the user manual found it helpful.
Bar chart for the question “How did you become aware of the app?”: treatment center 96 percent, internet and social media 2 percent, patient organizations 1 percent
Almost everyone discovered the app through their hemophilia treatment center.

The large majority of respondents stated that installing the app worked without any problems. 45% used the user manual; of these, 92% said it was helpful for their individual question.

In the free comment field, 35 users took the opportunity to tell us as the manufacturer that they are very satisfied with the application and that it makes documentation considerably easier. A few quotes:

  • “Thank you very much for your work in making life easier for us hemophiliacs!”
  • “It’s the first and only app I found that works together with our treatment center. The paper diary is finally gone!”
  • “:) keep it up :)”
  • “TOP *****”
  • “The application really makes documentation easier”