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The digital substitution diary for people with hemophilia

smart medication eDiary supports people with hemophilia in their therapy management. In hemophilia, blood clotting is impaired, making therapy with factor concentrates essential. These are medications that are subject to mandatory documentation.

With smart medication eDiary, all important events can be recorded quickly and easily. The essential documentation becomes a minor matter, leaving patients more time for other things.

It is the hemophilia app for straightforward documentation of prophylaxis, bleeds and procedures. Simple, secure and user-friendly.
It is the tool in patient care – for patients in everyday life as much as for the treating physician at the hemophilia treatment center. Physician-monitored home self-treatment makes it possible to optimize therapy and thus gain quality of life for the patient.

What is smart medication eDiary?

The digital substitution diary for people with hemophilia is a multiple award-winning electronic diary for optimized self-management in daily life with a blood clotting disorder. The digital diary is registered as a medical device and – unlike other diaries already available on the market – also works as a standalone app. This means patients can use smart medication eDiary independently of their treatment center.

smart medication eDiary is free of charge for patients and physicians.

The application is independent and self-contained, also works offline and is provided directly by the manufacturer. No registration in an official app store is required. The sensitive health data is available exclusively to the patient and, with their consent, to their physician. No data is passed on to third parties. Where needed and consented to, smart medication eDiary additionally offers interfaces – connections including studies, third-party systems, pharmacies and the German Hemophilia Registry.

Hand holding a smartphone showing the start screen of the smart medication eDiary appLaptop showing the factor level history chart, next to it a smartphone with the eDiary app
Explainer video about smart medication (3:17 minutes, in German)
Video transcript (28 sections)

Captions can be switched on via the player’s caption button. They appear inside the picture; the same text is shown here in full.

  1. 0:06 Hallo, ich bin Tim. Ich habe Hämophilie. Das ist eine angeborene Erkrankung, bei der die Blutgerinnung gestört ist.
  2. 0:13 Um Blutungen vorzubeugen, spritze ich mir alle zwei Tage den fehlenden Gerinnungsfaktor selbst.
  3. 0:20 Alle Behandlungen, aber auch Blutungen, muss ich in einem Substitutionstagebuch notieren.
  4. 0:25 Besonders, wenn ich unterwegs bin, ist das ziemlich umständlich und zeitraubend.
  5. 0:31 Dafür gibt es jetzt die App smart medication.
  6. 0:35 Mit ihr kann ich mein Tagebuch endlich komplett digital führen, auf dem Smartphone, aber auch auf dem Computer oder Tablet.
  7. 0:43 Dank der vorgegebenen Auswahlmöglichkeiten kann ich in smart medication mit wenigen Klicks eine Behandlung unkompliziert erfassen.
  8. 0:51 Außerdem verwaltet die App den Bestand meiner Faktorpräparate.
  9. 0:56 smart medication unterstützt mich auch im Fall einer Blutung.
  10. 1:01 Auf dem Männchen gebe ich an, an welcher Stelle ich geblutet habe, zum Beispiel in einem Gelenk.
  11. 1:07 Sichtbare Rötungen, Schwellungen oder Blutungen kann ich auch mit einem Foto dokumentieren.
  12. 1:13 Und wenn ich Schmerzen habe, erfasse ich dies in einer einfachen Skala.
  13. 1:18 Mit einem Klick übermittele ich all diese Informationen an meinen Arzt.
  14. 1:24 Wenn ich das nächste Mal in die Praxis komme, hat mein Arzt alle Informationen schon aufbereitet vorliegen.
  15. 1:31 Auch für meinen Arzt bietet smart medication viele Vorteile.
  16. 1:36 Er kann sich jederzeit einen Einblick in den Verlauf meiner Behandlung verschaffen und sich meine Blutungshistorie in einer Grafik anzeigen lassen.
  17. 1:44 Außerdem hat er die Möglichkeit, den Verbrauch meiner Präparate zu verfolgen.
  18. 1:49 Meldepflichtige Informationen kann mein Hämophilie-Arzt direkt aus smart medication heraus bequem an das Deutsche Hämophilieregister übertragen.
  19. 2:00 Aber natürlich nur, wenn ich vorher zugestimmt habe.
  20. 2:04 smart medication garantiert maximale Datensicherheit.
  21. 2:09 Meine Daten werden über ein Hochsicherheitsrechenzentrum verschlüsselt an meinen Arzt übermittelt.
  22. 2:15 Er ist der einzige, der weiß, welcher Name sich hinter meiner Patienten-ID verbirgt.
  23. 2:21 smart medication ist übrigens hersteller- und produktunabhängig.
  24. 2:26 Die Plattform wird in enger Zusammenarbeit mit dem Verein zur Förderung der Telemedizin in der Hämostaseologie, kurz VFTH e.V. entwickelt, der sich ausschließlich über Spenden finanziert.
  25. 2:40 Nicht nur Fachärzte können beim VFTH Mitglied werden, auch ich als Patient kann dem Verein beitreten.
  26. 2:48 smart medication ist ein registriertes Medizinprodukt und hat schon viele Innovationspreise gewonnen.
  27. 2:55 Neugierig geworden? Dann frag am besten mal bei deinem Arzt nach, ob er schon smart medication benutzt.
  28. 3:03 Auch die Patientenorganisationen können dir Auskunft geben oder wende dich direkt an den VFTH.

Why smart medication eDiary?

smart medication eDiary makes it easier for patients to document their therapy and bleeding events and provides the treating physician with the course of therapy in real time and in previously unknown quality.

The high-quality long-term data collection is also suited to supporting the long-term therapy goal of “avoiding joint bleeds”.

The consumption of factor concentrates is subject to mandatory documentation and regulated by the German Transfusion Act (TFG). Via an interface, factor consumption can be reported directly from smart medication to the German Hemophilia Registry (DHR).

Regardless of whether the factor concentrates are administered by the physician or by patients themselves, they must be documented – just like bleeding events. This is usually done in a paper diary that is presented to the physician at the next check-up.
But: the handwritten diary kept by the patient is error-prone, time-consuming and often incomplete. Physician monitoring of this therapy is barely possible; moreover, the recorded events are not always evaluated promptly but often months later, at considerable expense of time. This makes therapy optimization enormously difficult. The clearly presented records the app generates from the entries benefit patient and physician alike.

Comparison of two diaries: on the left a handwritten paper diary, on the right the overview view in smart medication eDiary
on the left a paper diary, on the right the digital diary from smart medication(click to enlarge)

smart medication eDiary makes life easier for physicians and patients

The more complete the documentation for people with blood clotting disorders, the better the therapy can be optimized.

The easier the documentation is for patients, the better they will keep it up. And the more detailed the recorded data, the easier it is for the physician to tailor the therapy to the individual patient.

The more individually the therapy is tailored to the patient, the fewer bleeding events they will have. Combined with a mobile, digital and smart documentation tool, patients gain flexibility in everyday life. The result: more freedom and quality of life!

smart medication eDiary – a diary with many possibilities

eDiary as a diary for the patient
eDiary to support patient and physician
eDiary for connecting patient, physician and pharmacy

smart medication eDiary on desktop, tablet and smartphone

Secure

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  • Usable on all devices without the usual app stores (web app)
  • No data shared with Google, Apple or others
  • Data and app reside exclusively on secured smart medication servers in Germany
  • No sharing or commercial use of your data

Independent

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  • Manufacturer-independent! Funded by a non-profit association
  • Open to all products! Documentation of all coagulation products
  • Innovative! Continuously developed together with physicians (VFTH), patients (IGH, DHG) and pharmacists (VHA)

Future-oriented

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smart medication supports …

  • patients since 2010 in managing their condition
  • all new and future therapies, including extended half-life products, subcutaneous therapies and gene therapies
  • science and research by conducting numerous medical studies

What our users say:

  • “The update is an absolute hit, exactly what I was looking for! Perfect – I am already entering data. Truly outstanding service.”

    (Tobi, father of a von Willebrand patient)

  • “Allow me to pay you a big compliment. The site is clear, plain, kept simple, very intuitive and reduced to what we patients need.”

    (Patient, Switzerland)

  • “Thank you very much for your work in making life easier for us hemophiliacs!”

    (Patient, Germany)

  • “It is the first and only app I found that works with our treatment center. The paper diary is finally gone!”

    (Patient, Germany)

  • “The application really does make documentation easier.”

    (Patient, Germany)
eDiary icon and QR code – leads to the smart medication eDiary sign-in page

Get started now!

  1. Download eDiary
  2. Register
  3. Done – ready to go!

All the benefits of smart medication eDiary at a glance:

Download Flyer (German) PDF, 1.1 MB Download Quick start guide (German) PDF, 476 KB Download Press release (German) PDF, 99 KB

Who is behind smart medication eDiary?

smart medication eDiary was developed by smart medication eHealth Solutions GmbH in collaboration with the VFTH e.V. (association for the advancement of telemedicine in hemostaseology)

smart-medication.euwww.vfth.org